DjinniWhispers
"From Awkward Laughs to Inked Paths: Writing Without Limits"
Discover the unique characteristics and challenges of Ehlers-Danlos eyes in our latest blog post, “Ehlers Danlos Eyes: The Quirky and Curious Look of EDS Vision.” Learn about their distinctive appearance, structural and functional changes, potential vision issues, and practical care tips. Perfect for anyone interested in EDS or eye health. Read more on DjinniWhispersBlog.com.
Join a disabled tourist’s journey through the Museum of Flight, uncovering the challenges and transformations in public behavior when disabilities become visible. Learn how visibility impacts disability tourism.
Explore the essence of Spoon Theory, created by Christine Miserandino, to illustrate the daily energy limitations faced by those with chronic illnesses, and how this metaphor fosters greater understanding and support.
Journey with me through the complexities of Mast Cell Activation Syndrome (MCAS) — a condition that’s as unpredictable as it is challenging. Discover the reality of living with MCAS, the intertwined nature with Ehlers-Danlos Syndrome, and the hope that current research brings to those affected.
Dive into an empowering review of a podcast that’s breaking barriers for EDS sufferers by providing credible, understanding, and practical guidance on navigating hypermobility with the help of Drs. Bluestein and Holm.
Discover the heartfelt plea of a patient with complex needs to healthcare professionals. This eye-opening perspective emphasizes the importance of understanding, advocacy, and genuine care in the medical community.