DjinniWhispers
"From Awkward Laughs to Inked Paths: Writing Without Limits"
Djinni Whispers Blog
“From Awkward Laughs to Inked Paths: Writing Without Limits”
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- Do Disabled People Get Labeled As “Creeps” More Frequently Than Non-Disabled People?
- Exploring Neurodiversity in TV: Authentic Representations and Ongoing Challenges
- 10 Famous Authors with Ehlers-Danlos Syndrome and Neurodivergence You Should Know About
- 10 Essential Tips for Thriving in the Summer Heat with Disabilities
- Understanding Neurodiversity: What Psychotherapists Need to Know
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How to Thrive in the Heat and Sun with Disabilities: A Summer Survival Guide
Hey there! Its officially July. Let’s talk about summer. Personally, I’m not a big fan because of the heat, sweat, and intense sun-yuk. The only thing I really like about summer is gardening. I do love me some garden fresh veggies. But I do know most people see summer as a time for fun, relaxation, and adventure. However, for people like me, with disabilities, the high temperatures and strong sunlight can bring some challenges. But don’t worry, with some planning and helpful tips, we can still make the most of the summer and enjoy our time out of school. Here are some ideas on how to do just that: Here are 10 essential tips for summer heat with disabilities
1. Plan Your Day Around The Sun
The sun’s power is at its peak between 10 a.m. and 4 p.m., so be sure to plan your outdoor activities for early morning(6-10 am) or later afternoon(5-10pm). I encourage early hours; this is usually when others are sleeping in, and you still have the cooler evening air hanging around. Then, you can go back to your hotel, home, Airbnb, etc, and nap during the hottest hours. Doing this can not only help you avoid the intense midday heat and reduce the risk of heat-stress issues but also a lot of crowds.
Stay Informed and Prepared: Use apps like WeatherBug or AccuWeather to check the UV index(Sun Sensitivity), heat(POTS), humidity, and pollen count(MCAS) and plan your day accordingly.
2. Stay Hydrated Like A Fish
As someone with POTS(Postural Orthostatic Tachycardia Syndrome), staying hydrated isn’t just for beauty; it is life-saving, especially in summer. People with specific disabilities, like Multiple Sclerosis(MS) or Ehlers-Danlos Syndrome(EDS), are often more prone to dehydration. Our tissues just don’t seem to want to hold water. Make sure you drink plenty of water throughout the day. It literally keeps your body cooler.
If you are like me and rarely like the taste of plain water, keep water enhancers with you. If you are ok with artificial sweeteners you have so many options. If you are like me and prefer to avoid them where possible, several companies have come out with stevia and other natural sweetener options. I really enjoyed the Ghost electrolyte drink mix; it was pricy but so insanely good. The Ultima Replenisher series is also a good option. Due to the sheer amount of electrolytes my family goes through, these are an occasional treat to buy, not something we can afford on the regular. I imagine a single person could manage the cost fine, though.
Quick Tip: Carry a reusable water bottle with you and set reminders to drink water or electrolytes regularly.
3. Wear Appropriate Clothing
As my dermatologist once said, the sun is not your bestie; hide from it. Use barriers like lightweight, loose-fitting, and light-colored clothing that has the built in shield that can help keep you cool. Fabrics such as cotton and linen are breathable and well-suited for hot climates. Additionally, there are athleisure fabrics that are moisture-wicking and provide UV protection. Don’t forget to wear a wide-brimmed hat and sunglasses to shield your face and eyes from the sun.
Bonus Tip: Look for clothing with built-in UV protection for extra defense against harmful rays.
4. Use Sunscreen
Regardless of your skin type, color, or race, sunscreen is a must. You are going to want to choose a broad-spectrum sunscreen with an SPF of at the very least 30. You need to apply a generous amount, too. The united states FDA has not approved a new sunscreen in literal decades. I know, it’s a travesty. There are “grey market” options, though. Korean brands are making waves due to their
lightweight and nongreasy formulas. The one I keep seeing is Beauty by Joeson. I really want to try it, its just the price to me is really outrageous. I know you get what you pay for, but I am a minister, and we are not wealthy people. Thirty bucks for a couple of ounces just seems so steep to me.
Fun Fact: There are sunscreens designed for sensitive skin and those with allergies, so there’s something for everyone.
5. Cool Down On The Regular
Heat is dangerous for anyone with disabilities. Finding ways to cool down regularly throughout the day is paramount. This could be taking a dip in a pool, using a damp cloth on your neck, or finding shade when you need a break. Parasols are starting to make a comeback as people get more serious about sun damage. These can also help with heat. Any umbrella can work in a pinch. If you do not have air conditioning, typically, places like grocery stores, libraries, malls, and large public buildings will have it. Check your local community pages to see who is offering cool-down spaces; take a book, your headphones, and maybe a crochet project, and go chill out for a couple of hours until the heat dies down.
Handy Hack: Portable, battery-operated fans and cooling towels can be lifesavers on hot days.
6. Mind Your Meds
As I have found out the hard way, some medications(SSRI and SNRI) can increase your sensitivity to heat and sun. Check with your doctor or pharmacist or on sites or apps like Drugs.Com to see if your meds could be a culprit and plan appropriately.
Reminder: Always keep an up-to-date list of your medications and any special instructions while traveling.
7. Accessible Travel Plans
Always do the research ahead of time. If you are planning a vacation for any length of time, make sure your destination and activities are accessible. Many travel websites and agencies specialize in accessible travel. These agencies provide information on wheelchair-friendly locations, accessible accommodations, and more; just ask about it.
Travel Tip: Try websites like Accessible Go and Wheelchair Travel, which offer valuable resources for planning your trip.
8. Stay In Touch
Please make sure you keep lines of communication open. Keep in touch with family, friends, and potential care teams, especially if you are heading out alone. Let someone know your plans and check in regularly. This is extremely important for those with conditions that can cause sudden issues like epilepsy, diabetes, or POTS.
Safety First: Wear a medical alert bracelet or necklace if you have a condition that might require immediate attention.
9. Join a Community
Joining online communities and forums for local (to your travel destination) groups for people with disabilities can connect you with others who have similar struggles and experiences, which can be incredibly insightful and supportive. Sharing tips and experiences with other disabled peers can make summer more enjoyable and less overwhelming.
Community Highlight: Websites like The Mighty and forums on Reddit can be great places to start your search.
10. Recommended Reading
For more tips and information, check out the following resources:
Conclusion
Summer can be a great season for everyone. With some prep and care, you can make the most of it despite any challenges you face. Remember, it’s all about finding what works best for you and your situation. So, get out there, represent our community, soak up some of those summer vibes (safely), and have a fantastic summer!
Resources:
https://www.aad.org/media/stats-sunscreen
https://www.cdc.gov/disasters/extremeheat/heattips.html
https://www.nationalmssociety.org/managing-ms/living-with-ms/diet-exercise-and-healthy-behaviors/heat-temperature
https://www.chronicpainpartners.com/pots-eds-and-the-scorching-sun-heat-intolerance-your-summer-survival-guide/
https://www.ehlers-danlos.com/story/hotcoldhaywire/
- Do Disabled People Get Labeled As “Creeps” More Frequently Than Non-Disabled People?
- Exploring Neurodiversity in TV: Authentic Representations and Ongoing Challenges
- 10 Famous Authors with Ehlers-Danlos Syndrome and Neurodivergence You Should Know About
- 10 Essential Tips for Thriving in the Summer Heat with Disabilities
- Understanding Neurodiversity: What Psychotherapists Need to Know
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